Oxygen Update

Ethan's oxygen was delivered in early June by Seattle Children's Home Care Services. The delivery guy went over how to use the big tank, how to fill the portable tank, how to use the cannula and all the other pertinant information that we need to know. It was great working with him and great to know that we will NOT have to work with Apria for our home care equipment this time around. SO relieved! Our normal driver will come every 3 weeks to fill the tank unless we call sooner to have it refilled. Our normal driver will be Deon.

The smaller tank is the portable machine and gets refilled by the big tank.

Ethan did not like the oxygen the first night. He tried to pull it out and fought me for hours, so I finally gave in at 2am and let him sit on the couch and watch Sprout. He would cry and then get distracted by the show and then remember and cry a few minutes later and then get distracted by the show again. Each time, I would have to keep him from pulling out the cannula.

The next night went much smoother. I waited until he fell asleep and then put the cannula in. He woke up and fussed, but fell back asleep pretty quickly. The rate of oxygen is really low, at .25. Ethan did wake up a couple of more times, but overall, the cannula stayed in. When he woke up in the morning, he was a little upset. When he saw me, he pointed at the cannula and said, "Dis (This). All done." He didn't try to pull it out and waited for me to do it. What a good boy!

I think things will continue to go well and hope that we can get a plan on how long he will have to be on oxygen at his craniofacial appointment on June 20th. At that time, we will not only get to talk to his regular doctors, but also his ENT and his sleep doctor (pulmonary).

-Dina