Wednesday, December 24, 2014

Reversion To The Mean

Considering we have gone literally years now without getting a hint of bad news from Children's I suppose something like this was overdue.  Reversion to the mean, I suppose.  

We just had a regular ophthalmology follow up at Children's this PM.  

Not so good this time.  :-(  

Ethan's right eye (the affected eye) is showing signs of becoming slightly weaker.  This means the doctor wants to start patching and eye glasses now.  Patching will be 4 hours a day, 5 days a week, for the next six months.  All four hours don't have have to be in a consecutive block.  Glasses will be full time but probably will stop after age 8.  He will have a follow up om 6 months to see if it's gotten any better and if so, the patching may stop.  Or it may not.  Depends.  But according to the doctor, whatever the outcome, worst case is that it continues until age 8.  Then he's done with everything - unless he actually has bad eye sight.  

His glasses prescription is very weak though.  -1 in the affected eye and nothing in the good eye.  

We are going to try to get the prescription filled tomorrow but it depends on if he can find a frame he likes and is comfortable.  But chances are we won't actually get the glasses until some time in the new year.  

The doctor actually gave us a choice - you can do patching for 4 hours/day for 5 days/week for six months with glasses - or you can patch full time 24/7 for 6 weeks.  But we don't think Ethan would take very well to the 2nd alternative so we opted for patching w/ glasses.  

The aim is to get the brain to use the bad eye more.  Apparently at age 8, the brain is fully trained and you don't need to do it anymore.  This is prevent amblyopia - where the brain eventually just stops using the bad eye (and you go blind in the bad eye).  

As of now, the doctor is *not* concerned because the difference between the good eye and the bad eye is so small.  But he says the time to make the corrections is now and not later.  

So glasses start as soon as we get them, and patching starts immediately (so given it's 7PM and we just got home - that probably means starting tomorrow).  

-b

"Hello again, hello. Just called to say hello. "

Yes, it's been a very long time.  Over a year.  Since this blog eventually turned into a family news blog, that function soon got supplanted by Facebook where family news and events got posted (complete with pictures!).

At this point, the blog will probably just be used for posterity and to log events relevant to Ethan's condition.

With regard to that topic - nothing has changed.  Since the last update, Ethan has been doing very well and has come out of every regular Children's followup with nothing to report except that he is coming along nicely!

And for the sake of posterity - other news that has happened in the last year+
*The boys continue with Karate.  Ethan is now a Gold stripe belt (3rd color rank for kids 7 and under at his school) and Jonathan is a Purple belt (4th color rank for kids 7-13 at his school)

*Ethan started Hockey 1.

*Jonathan has finished losing his first wave of primary teeth.

*Ethan started loosing his teeth.

*Ethan attended his first Star Trek con with us and meet several celebrities, some of whom were quite taken with him!  Jonathan opted to not go and spent the weekend at Grandma's.

*Both  boys attended their first ballet - the Nutcracker.

*Yours truly became an American citizen!

*Ethan got discharged from Speech Therapy.  He is done!


To stay more current on family events, you should friend myself and/or Dina on Facebook.

-b